Thursday, October 28, 2010

THURSDAY MADNESS!!

Today is a horrible day for Hopeful Angel.... besides IC I have ruptured disc and pinch nerves... and today is not a good day!! I believe I'm on my 3rd day of a flare, with my back acting up.... Today is not the day for my body to act up!! I have to take the youngest to her first karate class...(Life goes on, whether  I feel good or not) I think that's why I get so emotional... I try to be this strong, courageous women for my kids and husband...(but days like today, I just want to lay in bed all day and cry my eyes out!!)... Some people in my life think if I just get up and get myself going that I'll magically feel better!! When they express this... it makes me feel like my disease isn't taken serious...(thank God my husband is supportive and gives me unconditional love).. because if these people were my support group I think I would lose it and be DEPRESSED!! This is why I thank God for my wonderful husband, because he knows this disease is REAL and the PAIN is REAL...

 So instead of sitting here with my sob stories and my pain...I want to share some positive words with everyone!! Maybe it will put me in a better mood..
 "When I sit in darkness, the Lord shall be a light unto me." Micah 7:8
 "The Lord also will be a refuge for the oppressed." Psalm 9:9
"So will I save you, and you shall be a blessing." Zechariah 8:13
Well everyone have a wonderful night and God Bless!!

 

Wednesday, October 27, 2010

Short And Sweet

Well today's entry will be short and sweet! I think with all the new stress of yesterday's doctors appointment took a toll on me today.... All I did was lay around hoping I wasn't one of those girls on the show "I didn't know I was pregnant"... because it sure feels like I'm about to deliver a baby, ovaries, or bladder.... one of the three.... All you IC patients have all felt this many times during a flare....( this is the only way I can describe the pressure and pain).... And the sad thing about this disease is it's set off by stress, or any kind of change in hormones... I keep hyping myself up for an installation, but all I have are men catheters!! Do you know how bad that feels when my husband goes a little to far or moves and stabs my bladder wall....(then I get to bleed for a couple days after)...I need some encouragement....encouragement to go up stairs and get it over and done with.... Sometimes I wonder who's Cheerios's I peed in to deserve this...LOL...

Well my friends it's off to catheter myself and cozy up with a bottle of pills for the pain!! I hope tomorrow will be a better day....Goodnight and God Bless!!

Tuesday, October 26, 2010

A Day I would like to forget!!

Hello everyone....I hope you all had a good Tuesday...  I on the other hand would like to forget today ever happened...(Ok, maybe that's going a little over bored) I had my doctors appointment and remember this was with a General doc to find out what going on with my back and bowel problems.... The doc seemed to be really nice and listened to all my symptoms.... So I go through all this just to find out I need to see 3 different specialist....A nerve specialist, a gastric doc and a bone specialist....Don't get me wrong, I am very happy I got some kind of direction...I just thought the general doc would be able to help... I will say it again... I WISH I COULD TAKE A VACATION FROM MY BODY!! I was expecting just a general check up from the new doctor and maybe some blood work.....Only to find out I have to drop my drawers and spread my cheeks..LOL...(sorry if that's T.M.I) What a day that was... Maybe he should have bought me a drink first, maybe that's why I was so traumatized...LOL
 I'm trying to compare today with the day my urologist showed my husband and I how to do installations(with my husband, nurse and huge mirror looking at all my "goods") Which of the two was more horrifying for me?!? I think I'm going with learning how to do installations!! I can only imagine what the gastric doc has in store for me?!?LOL...
 I'm sure many of you have some kind of story... Don't hold back! Share with me those awkward moments.... Well my friends today has been a day to remember...(as much as I would like to forget it..) Have a Wonderful evening...Good Night! God Bless!!

Monday, October 25, 2010

What a way to Start off...

Hello Everyone....My name is Angelica...but I go by Angel...I'm a 31yr old woman who is married to a Wonderful Man with two beautiful daughters...my oldest is 16yrs old and my youngest is 6 soon to be 7yrs old..My blog couldn't start at a better time.. with IC and everything else...sometimes I wonder how I keep it together....(then in a complete second...I do remember How..)The Grace Of God...Tomorrow I have an appointment with a New general doctor...(since my uro recommend that I go to one) With IC...who knows what other diseases come with it?!? Weather its Fibromyalgia,Inflammatory bowel disease,Systemic lupus or Endometriosis...for the past three months I have lost a lot of weight...(which I don't mind the weight loss.LOL..) but Doctors are kind of worried that a 31yr old can lose 30 pounds and have urinary and bowel accidents... This has been going on for awhile now... So tomorrow I get to sit down with someone new and tell them all my little nasty symptoms that I have... I, myself think I have so much going on that I'm worried I might just leave something out! Has anyone ever felt they just need a vacation from their own bodies?!?! If only..RIGHT?  For weeks now I have kept my mind from wondering off into "The Negative World"(is what I call it)... I have KEPT MYSELF so busy with the kids and the hubby.. And here we are, the night before... Wish me luck... Because the only thing that is going through my head right now is... If God is with me... Who and What can be against me?!? I will say my nightly prayer and hope for the best...I think it's kind of eerie that one year ago.. October of 2009 I found out I had IC... and here I am a year later with new symptoms.... I am fairly new to the whole IC Disease... But I have spent many hours and many days doing my research on this disease...I have found out that many of us have not just one but two-three diseases that are accompanied with IC...I hope to Share experiences and thoughts with you...Here's to us...and God Bless!